You’re Not the Only One Who Feels This Way

When you feel isolated in your MS experience — here’s proof you’re not alone.

May 26, 2025

📣 Intro:

This issue is built around the voices of people like you — those living inside glitchy, unpredictable, and completely misunderstood bodies.

Whether we’ve got five readers or five thousand, what matters is this: none of us are doing this alone.
We might be walking different paths, but the terrain? It’s shared.

🧠 Theme: Healing Isn’t Linear. Neither Is MS.

We asked a few readers:
“What’s something you wish more people understood about life with MS?”

💬 “It’s not always getting worse. It’s just… never the same.”

– Dana, 34, VA
One day I can carry groceries. The next I can’t carry a sentence. That doesn’t mean I’m spiraling — it just means my body is doing its unpredictable thing. I wish people could stop looking for a pattern and just meet me where I am that day.

💬 “My recovery takes longer — not because I’m lazy, but because I’m rebuilding from below zero.”

– Carlos, 42, AZ
After a flare, it’s not like getting back to 100%. It’s like learning how to function again. Energy is currency, and I’m living paycheck to paycheck.

💬 “Sometimes healing means doing nothing.”

– Lena, 29, TX
I used to feel so guilty about ‘wasting a day.’ Now I know those days were the reason I could show up the next one. Resting is how I rebuild. I wish more people saw that as valid.

🔥 Hot Plate, Cold Nerves: "Snack Board Survival"

Low effort. No cooking. High morale.

  • Crackers

  • Cheese or peanut butter

  • Pickles or olives

  • A handful of berries

  • Chocolate square (mandatory)

  • A weird leftover thing for chaos

Arrange it like an art piece or just pile it all on a plate. Either way — it’s dinner.

🗳️ Reader Poll: What Does ‘Healing’ Look Like to You Right Now?

  • Sitting outside for 5 minutes

  • Turning off my phone

  • Saying “no” without guilt

  • Eating something soft and comforting

  • Letting myself feel what I feel

Hit reply and tell us your version. We’ll feature answers in a future issue.

💬 Journal Prompt:

What part of your MS story are you still learning to accept — and how can you give yourself more grace while you do?